Privacy, Trust, and Consent in Aging Research Recruitment
- Roybal Coordinating Center
- 2 days ago
- 1 min read
April 27-28, 2026 | 11:30AM – 4:00PM ET
Purpose and Background
This two-day workshop addresses critical challenges in recruiting participants for aging and Alzheimer's Disease and Related Dementias (AD/ADRD) research while also maintaining robust privacy protections and informed consent processes. As clinical trials increasingly leverage digital technologies, artificial intelligence, and multi-site data partnerships, researchers must navigate complex ethical considerations and regulatory requirements to build and sustain trust with older adult populations.
The workshop brings together leading experts in bioethics, data privacy, health law, technology innovation, and community engagement to explore best practices in privacy-preserving recruitment strategies, accessible consent processes for individuals with varied cognitive abilities, federal data partnerships, and sustainable infrastructure for participant engagement. Sessions will address regulatory compliance, AI-driven recruitment tools, community-based strategies, and cost-effective approaches to broadening trial participation.
Audience
This workshop is designed for professionals engaged in clinical research on aging and Alzheimer’s and related dementias, including the following:
Bioethicists and research ethics professionals
Institutional Review Board (IRB) members and administrators
Clinical trial coordinators and recruitment specialists
Data scientists and health informatics professionals
Federal and institutional policy makers
Patient advocacy organizations
Health system administrators and partnership leaders