This two-day workshop addresses critical challenges in recruiting participants for aging and Alzheimer's Disease and Related Dementias (AD/ADRD) research while also maintaining robust privacy protections and informed consent processes. As clinical trials increasingly leverage digital technologies, artificial intelligence, and multi-site data partnerships, researchers must navigate complex ethical considerations and regulatory requirements to build and sustain trust with older adult populations.
The workshop brings together leading experts in bioethics, data privacy, health law, technology innovation, and community engagement to explore best practices in privacy-preserving recruitment strategies, accessible consent processes for individuals with varied cognitive abilities, federal data partnerships, and sustainable infrastructure for participant engagement. Sessions will address regulatory compliance, AI-driven recruitment tools, community-based strategies, and cost-effective approaches to broadening trial participation.