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April 27-28, 2026 | 11:30AM – 4:00PM ET

Purpose and Background

This two-day workshop addresses critical challenges in recruiting participants for aging and Alzheimer's Disease and Related Dementias (AD/ADRD) research while also maintaining robust privacy protections and informed consent processes. As clinical trials increasingly leverage digital technologies, artificial intelligence, and multi-site data partnerships, researchers must navigate complex ethical considerations and regulatory requirements to build and sustain trust with older adult populations.

The workshop brings together leading experts in bioethics, data privacy, health law, technology innovation, and community engagement to explore best practices in privacy-preserving recruitment strategies, accessible consent processes for individuals with varied cognitive abilities, federal data partnerships, and sustainable infrastructure for participant engagement. Sessions will address regulatory compliance, AI-driven recruitment tools, community-based strategies, and cost-effective approaches to broadening trial participation.


Audience

This workshop is designed for professionals engaged in clinical research on aging and Alzheimer’s and related dementias, including the following:

  • Bioethicists and research ethics professionals

  • Institutional Review Board (IRB) members and administrators

  • Clinical trial coordinators and recruitment specialists

  • Data scientists and health informatics professionals

  • Federal and institutional policy makers

  • Patient advocacy organizations

  • Health system administrators and partnership leaders






Webinar Overview

Join the Roybal Center for Promoting Adherence to Behavior Change and Enhancing Cognitive Function for an upcoming webinar, Tuesday, April 7, 2026, at 12:00 pm ET.


This webinar will feature Dr. Martin Sliwinski, Gregory H. Wolf Professor of Aging Studies and Professor of Human Development & Family Studies at Penn State University. Dr Sliwinski is also Director of the Center for Healthy Aging and the Geroscience and Dementia Prevention Consortium. Dr. Sliwinski's presentation, titled 'Measuring a Moving Target: Ambulatory Methods for Capturing Cognitive Change in Daily Life,' will discuss ambulatory methods for studying cognitive change as it occurs in everyday life.



Thursday, March 19, 202612:00 – 1:00 pm ET

Presenter: Jenny Portz, PhD

Panelists: Julia Burgdorf, PhD and Jody Long, MSN, MBA, RN, CEN

Moderator: Hillary Lum, PhD, MD

Hillary Lum, PhD, MD

Professor of Medicine,  Division of Geriatric Medicine, Department of Medicine, University of Colorado Anschutz

Jenny Portz, PhD, MSW

Assistant Professor, General Internal Medicine, University of Colorado Anschutz


Julia Burgdorf, PhD

Research Scientist, Center for Home Care Policy & Research,  VNS Health

Jody Long, MSN, MBA, RN, CEN

Director of Clinical Affairs,

PointClickCare

About IMPACT Grand Rounds

The IMPACT Collaboratory is hosting webinars on the 3rd Thursday of each month, addressing issues in conducting embedded pragmatic clinical trials on non-pharmacological interventions for people living with dementia and their care partners. The next session will feature Donna Spiegelman, Sc.D.



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